Open the above images as a single PDF file: Acquired Brain Injury Research Lab, Improving the quality of life of persons with acquired brain injury (pdf)
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NHCC/NPHSNC Summary
In their 2006 publication Neurological Disorders: Public Health Challenges, the World Health Organization concluded that “a large body of evidence shows that policymakers and health-care providers may be unprepared to cope with the predicted rise in the prevalence of neurological and other chronic disorders and the disability resulting from the extensions of life expectancy and aging populations globally.”
To address this issue, and the present-day needs of the over 10 million Canadians living with a brain condition, a group of neurological health charities came together in 2008 to collaborate as Neurological Health Charities Canada (NHCC). The NHCC is a collective of organizations that represent people with chronic, often progressive, neurological and/or neuromuscular diseases, disorders, conditions and injuries in Canada.
NHCC’s role is to provide leadership in evaluating and advancing new opportunities for collaboration specific to advocacy, education and research projects related to brain health. Its mission has been to improve the quality of life for all persons with chronic brain conditions, and their caregivers, by elevating brain health to the top of government agendas. This is to be done by increasing awareness, influencing government decision makers regarding brain health and ensuring that research, prevention, treatments and supports for those living with chronic brain conditions are universally accessible and fully funded.
In 2009, NHCC was granted $15M to fund a national study aimed at filling in gaps in knowledge about the state of neurological conditions in Canada. Called the National Population Health Study of Neurological Conditions, this four-year study will provide new information to improve knowledge about the impact of current and projected neurological diseases over the next twenty years. The funding serves to support three national surveys, thirteen Pan Canadian Research Studies, a Micro-Simulation Project before concluding with a Synthesis Process to be submitted as a formal report of recommendations to the Minister of Health.
Concluding in 2013, this study is the first of its kind in Canada where it will provide key information to improve current knowledge on neurological conditions. Of the seventeen projects listed above, thirteen will generate data related to Brain Injury. The NHCC has made a long-term commitment to furthering Canada’s understanding of neurological disease. It plans to strengthen itself by building a strong membership, formalizing governance, increasing member engagement and supporting active provincial working groups.
It will continue to advance policy priorities by building stronger relationships with Parliamentarians, cultivating new political and bureaucratic champions as well as engaging the Health Portfolio leadership in strategic dialogue. Finally, the NHCC will persist at building a profile of brain conditions in Canada and strengthen the national brain community network.
Dear Friends,
My name is Troy Adams. I’m a 24 year old male, currently living in Exeter, ON. I grew up just outside of Watford, ON. I’ve spent the past few years travelling with my job as a News Anchor and Reporter. I’m currently working for myFM as a News Director/Ops Manager.
On August 11, 2003 — I was involved in a MVC. To this day — I suffer from many body functioning injuries (sore joints/swollen back/heals/bad knees) as a result from this crash, but most importantly, I battle each and every minute of my life, the repercussions of my brain injury. Whether it’s depression, anxiety, bouts of OCD, anger issues, memory loss etc – running seems to be the one thing that can always ease my mind. It allows me a moment of Zen – where for a few minutes, I am once again in complete control of my thoughts. I’ve always enjoyed running and I use it as therapy.
Starting in April 2012, I will be starting my Cross Canada Run, raising money and awareness for Brain Injury Awareness, Education and Research. “Troy’s Run: Hope, Prevention, Education”, will raise money for the Brain Injury Association of Canada.
Every step and every mile count in this journey. Together we will help people understand and become better educated on topics surrounding Brain Injury. I’ll be starting my journey in St John’s, NL and will finish in Victoria, BC.
This journey will only be completed by the help of volunteers and sponsors. I will take the biggest load, but I’m hoping there are others who would like to become involved. Whether financially, emotionally, or spiritually – everything is needed and will help.
Please visit my website at www.troysrun.com for information on how you can become involved. There’s also video links, interviews, pictures and blog postings.
I’m on Facebook under Troy Adams, ‘Troys Run’ and ‘Cross Canada Run’. I’m also on Twitter @troyadams23
Together, we can be the change that’s needed.
Troy Adams
226-377-4565
Troyadams23@gmail.com
www.troysrun.com
www.facebook.com/crosscanadarun
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In July, the first call for nominations was issued for the Prime Minister’s Volunteer Awards. I am happy to inform you that you now have more time to complete nominations, as the deadline for submissions has been extended to October 14, 2011.
What are the Prime Minister’s Volunteer Awards?
The Prime Minister’s Volunteer Awards recognize and celebrate the exceptional contributions of volunteers, local businesses and innovative not-for-profit organizations toward improving the well-being of families and their communities.
Who can you nominate?
Volunteers often make valuable contributions toward accomplishing the goals of organizations. Three award categories apply to volunteers: Lifelong Achievement, Emerging Leader and Community Leader.
The work that organizations and their volunteers do is often supported by local businesses. The Prime Minister’s Volunteer Awards recognize this support through the Business Leader category.
If your organization receives assistance from volunteers or business partners, why not consider submitting a nomination?
Your organization may be eligible for nomination in the Social Innovator category. Please share information about the Awards with your members, associates and employees – encourage them to submit nominations of their own. Anyone can submit a nomination.
Seeking regional reviewers to assess nominations
Finally, the Prime Minister’s Volunteer Awards need volunteers of its own. One step in the nomination assessment process is a regional review. This review will be conducted by volunteer representatives of award category areas (volunteers, not-for-profit organizations and businesses) from across the country. You are invited to submit your name for consideration, by October 7, to participate as a regional reviewer. To volunteer as a regional reviewer, please call 1 877-825-0434.
More information
For more detailed information about the categories and how to nominate, please visit http://www.pm.gc.ca/awards or call 1 877-825-0434.
The Honourable Diane Finley
Minister of Human Resources and Skills Development
Help bring Head Strong $35,000 closer to helping Brain Injury survivors with their education costs. Zehr Insurance Brokers Ltd has nominated Head Strong as an idea in the Aviva Community Fund to receive $35,000 that will benefit the Brain Injury Association of Canada’s Bursary Fund – assisting brain injury survivors with costs associated with post-secondary education.
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To access the ARCH Alert: Ontario Election 2011 issue of the ARCH Alert
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Hello BIAC Community,
Please see the Letter of Invitation, The Everyday Experience of Living with and Managing a Neurological Condition, (The LINC Study) and the poster from the LINC Study Team – Dr. Tanya Packer and Dr. Joan Versnel from Dalhousie University.
As you know, the National Population Health Study of Neurological Conditions (NPHSNC) is well underway, and some teams will be looking for the NHCC membership to help with recruitment of their membership to participate in various surveys.
The Dalhousie team is looking for your help to assist in recruitment for their Living with a Neurological Condition (LINC) Study. The study will focus on the impact of neurological conditions on individuals, as well as families. This is an excellent opportunity to have your neurological condition (BRAIN INJURIES) represented in the NPHSNC.
We really want to help build a “brain” community, and invite Canadians to participate in this first ever national study of neurological conditions. Your participation and assistance is paramount in this effort.
Should you have any additional questions, or require further clarification, please do not hesitate to contact me.
Regards,
Celina Rayonne Chavannes, MBA
Director, Research Initiatives
Neurological Health Charities Canada
4211 Yonge Street, Suite 316
Toronto, Ontario, M2A 2P9 Canada
Phone: 416-227-9700 ext. 3314 (Tuesday and Thursday only)
Mobile: 416-305-8380 (Feel free to call anytime)
www.mybrainmatters.ca
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